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{{Rapid Grant report|Status=Under review|Date=2016-17|Grantee=organization|Type=Final}}
I would like to especially thank [[User:Saintfevrier]]. None of this would have been possible without her previous effort and work in [[Grants:IEG/Wikitherapy]]. She has been a model of inspiration for me and my work with patients at the hospital.
== Goals ==
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== Preparation ==
[[File:Yo edito en Wikiquote 02.jpg|thumb|We edit Wikiquote:
[[File:Trabajo en el hospital Alvear 07.jpg|thumb]]
[[File:Yo edito en Wikiquote 01.jpg|thumb|We edit Wikiquote:
[[File:2017 Wikiquote at the hospital 02.jpg|thumb]]
[[File:Yo edito en Wikiquote 03.jpg|thumb|We edit Wikiquote:
[[File:2017 Wikiquoteando 02.jpg|thumb]]
[[File:2017 Wikiquote at the hospital 01.jpg|thumb]]
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[[File:2017 Wikiquoteando 01.jpg|thumb]]
[[File:2017 Wikiquote at the hospital 07.jpg|thumb]]
[[File:Yo edito en Wikiquote 04.jpg|thumb|I edit Wikiquote:
=== At Wikiquote ===
First, I ran for administrator in at Wikiquote and I was elected with 100% of the votes.
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=== At the hospital ===
The first step was the project implementation at the hospital. It is a public hospital offering free care. The course
I wrote a project and showed it to the Director of the hospital, the Outpatient Director, the
I asked a designer to design some banners which I set up at the entrance and on the walls of the computer laboratory. They can be seen in the photos taken at the lab.
== Recruitment of participants ==
The second step was to
I began talking with the Chiefs of each Department to
The school refused to refer students because it would require special authorization from the
It was very difficult to begin the work, but I had the support of the Chief of Staff at the Department of Adolescence and he talked with the Hospital’s Director who liked the program. At first, only the Chief of Staff at the Department of Adolescence gave me a referral of one patient, so I started with only one patient. It was an
Each time a patient was
== Implementation Methodology ==
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I began the preparation of the equipment, checking if the wifi connection was working and if the computers were okey.
I started with a single patient
I lent them a camera and we started taking photos of the hospital hoping to someday create the hospital's article in Wikipedia. I explained them how to upload
I introduced them
We began editing low quality articles. That allows them to make mistakes without facing conflicts between them and veterans users.
The work on these articles gave me the first evaluation of the individual performance of every patient.
When we decided to
I began exploring and identifying the
I taught them how to send
=== Surveys and interviews ===
When I took surveys among the staff, I asked them if they knew any Wikimedia
I took interviews with the staff of the hospital to
I was very disappointed with the results, since
The patients did not know Wikimedia activities nor Wikiquote. When we began to look for sourced quotations from notable people with Google they used Wikipedia or Wikiquote, even if they did not know them, as a resource. I had to
Some patients told that they browse the web almost everyday but they do it mostly to visit
They had never added content or information to the web. They said, for
Answering the question, how would you describe your relationship with those around you in your daily life and the internet? they answered: «''I have no relation nor link''» or «''I am not very popular''».
The results of UCLA Loneliness Scale were very interesting since patients tended to lie, not on purpose, but as a kind of misrepresentation of reality. They said that they had a lot of friends but they could not name anyone. When I asked them about those friends they named
===
There have been changes
The course was supposed to consist of a weekly meeting of three hours duration but I realized that I had problems with that. The duration was very long, they got tired and the frequency was not enough. If they spent a long time without working they forgot what they had learned. More specifically, their interest as well as their ability to comprehend the information presented decreased with an increase of the duration, so, I've decide to see them more often but with a shorter duration of each session. I began to see them twice a week and sometimes three times a week but each class lasted one hour and a half and not three.
Patients tended to learn better and to retain more of the information when they worked less time and more often.
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=== Images ===
The patients
I've also created four logos and banners to use during the course that were also uploaded to Commons.
Many of the photos uploaded to Wikimedia Commons can be seen at the web page of the [http://adolescenciaalvear.com.ar/ Adolescencia Alvear Department], the article in Spanish Wikipedia [
===Implementing classes of editing ===
The course began in November taking photos, uploading in Commons, learning the principles of Wikiquote and how to access the needed information and sources. At the beginning the patients were afraid of editing or publishing so we worked with Word and we uploaded the article when they felt more secure or safe.
Some of the patients attendance was not constant. Sometimes they came and sometimes they did not come. Some patients disappeared from the course and after a while they returned. Absences were due to their own pathology. When a patient did not
At the beginning, the training was held in 3 two-hour sessions per week during the morning,
One of the patients entered each class very upset, saying that he would not be able to drill his head with his thoughts and that he got very nervous. He said that he felt suffocated, that he could not breathe and that he would not be able to come any more. Soon after starting to work, he forgot everything, he concentrated and he began to work pretty well.
Another one listened to voices that told him that he would not be able to do it, that he would not know how to edit, that Wikiquote
He could not think about what topics to work on, but he showed me how he did to search for books in Google Doctors so he could get some ideas out there. I pointed out that he also has something to give and to teach others because I had learnt that Google Doctor existed. He felt very happy about that.
Another patient, even if, at the beginning, it was very difficult for him to understand how to contribute, he improved 5 existing articles at Wikiquote and he managed to created 5 new articles. His father commented that he felt very proud about his son's achievements since he could do on the web things that the father did not know. He pointed out that he admired his son
I had to create small and manageable tasks every class. I had to pay them personalized attention. The teaching was very personalized, much more than with a healthy person.
The time was used mainly to
At Wikiquote, the project had great acceptance among veterans users.
The response from users could not have been better. They showed great support to the project and, to my surprise, accustomed to conflicts en Wikipedia, they helped the newbies in their editions.
I
I was monitoring and supervising patients's
I had to make suggestions because they did not know what to choose as a topic to edit.
In line with the international edit-a-thon holding by BBC's 100 Women, to increase female biographies on Wikipedia, I invited them to use [http://www.huffingtonpost.co.uk/entry/bbc-100-women-of-2016_uk_5832ca0be4b09025ba32bec2 BBC ‘100 Women Of 2016’ Highlights] as a source. I helped them to improve their editing. I also proposed them to narrow the gender gap creating articles about other women.
For one patient,
Another patient could not differentiate the automatic responses of a bot with the messages of a human user and answered to all in the same very polite way.
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Notifications were sent the es:Wikiproyecto:Psicología, [https://es.wikipedia.org/w/index.php?title=Wikiproyecto_Discusi%C3%B3n:Psicolog%C3%ADa&diff=prev&oldid=97584327 here], and the es:Wikiproyecto:Medicina, [https://es.wikipedia.org/w/index.php?title=Wikiproyecto_Discusi%C3%B3n:Medicina&diff=prev&oldid=97584337 here].
The
== Obstacles ==
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Obstacles and implementation issues at Wikiquote can be placed into two categories:
==== Software ====
The software
==== Patients pathology ====
I teach editing Wikipedia in the University and
In one case, her concerns were primarily related to whether participating in the course would result in a problem with her church.
She had recently opened her heart to
=== At the hospital ===
Obstacles and implementation issues at the hospital can be placed into
==== Bureaucracy ====
The first obstacle that I faced was the bureaucracy of the institution.
The onset was delayed due to the hospital bureaucracy. The Ethics Committee was to accept the workshop and its feasibility within the hospital. I could not close the course as I wished with an event in the hospital. I needed an official permit for
==== Social obstacles ====
The second obstacle that I faced was acceptance. Only with the acceptance from the staff, the
One of the biggest concerns identified by professionals were ''«Can it hurt patients?» «What if he has a psychotic breakdown by editing? What you are going to do?» «Better start learning Word and not with something so complicated as Wikiquote».''
I also had meetings with staff from Ambulatory Unit but, even if they promised me to give me referral of patients, they never show up.
One social worker of the Day Care Hospital of the afternoon showed interest. I had a meeting with the Chief of Unit and the whole staff and they
==== Technical obstacles ====
Technical obstacles deal with issues relating to the physical components that make up the
[http://adolescenciaalvear.com.ar/gabinete-de-neurospicologia/ This] is the computer lab where I work. The photo comes from Wikimedia Commons.
The computers
Outside the stipulated time, patients could not access the hospital's computers as I wanted.
== Outcomes ==
As you can see [https://stats.wikimedia.org/wikiquote/EN/SummaryES.htm here], we don't have many active editors in Wikiquote in Spanish. If you see our statistics, we don't have [https://stats.wikimedia.org/wikiquote/EN/TablesArticlesNewPerDay.htm new articles very often], sometimes months go by until a new article is created and sometimes we've got [https://stats.wikimedia.org/wikiquote/EN/TablesWikipediaES.htm only one article per day]. If we think that the average number of
{|width="700px" align="center" style="border: 1px solid grey;" cellpadding="0" cellspacing="0"
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|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"|Done
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|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"|To upload images
|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"|
|-▼
|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"|To
|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"|
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|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"|To create a project page on wiki.
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|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"|To create awareness and increase visibility and understanding of the Wikimedia projects.
|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"|Done
▲|-
▲|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"|To create a project page on wiki.
|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"|Done▼
|-▼
▲|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"|To create a project page on wiki.
|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"|Done▼
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|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"| To research about the beneficial effects of editing as being part of a bigger community
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▲As you can see [https://stats.wikimedia.org/wikiquote/EN/SummaryES.htm here], we don't have many active editors in Wikiquote in Spanish. If you see our statistics, we don't have [https://stats.wikimedia.org/wikiquote/EN/TablesArticlesNewPerDay.htm new articles very often], sometimes months go by until a new article is created and sometimes we've got [https://stats.wikimedia.org/wikiquote/EN/TablesWikipediaES.htm only one article per day]. If we think that the average number of editions and the average number of new articles are so low, the number of articles that the patients have created in this project make a difference. You can also see a lot of photos taken by the patients in [http://adolescenciaalvear.com.ar/ this web site].
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|-
|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"|Number of images uploaded to Wikimedia Commons embedded in Wikipedia articles.
|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"|5 Wikipedia in Spanish article [
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|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"|Page of the blog
|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"|[https://andreapatriciakleiman.wordpress.com/2017/04/04/wikiquote-en-el-hospital/ Wikiquote en el hospital]
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|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"|Page of the blog of Wikimedia Spain
|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"|[ In process]
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|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"|Page in Facebook
|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"|[https://www.facebook.com/profile.php?id=100015339857671 Facebook]
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|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"|Paper V Jornadas del Hospital de Emergencias Psiquiátricas Torcuato de Alvear
|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"|Done, to be presented May 24 2017
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|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"| Paper VII Encuentro de la Liga Latinoamericana para el estudio del TDAH (LILAPETDAH)
|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"|Done, to be presented June 13 and 14 2017, [http://www.cientifica.org.ar/site/index.php/es/ Sociedad Científica Argentina]
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|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"|Paper XVIII Congreso de la Asociación Argentina de Psiquiatría Infanto Juvenil y Profesiones Afines (AAPI)
|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"|Done, to be presented June 15 and 16 2017, [http://www.aapi.org.ar/ AAPI]
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|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"|Poster to be presented
|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"|Wikimania 2017
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|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"|[https://www.youtube.com/watch?v=fJda_z7j4Aw&feature=youtu.be Video 1].
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|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"|[https://www.youtube.com/watch?v=NcCpaTNuHOE Video 2].
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|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"|Video
|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"|[https://www.youtube.com/watch?v=NeWsX8Y5vrw Video 3].
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|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"|Video
|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"|[https://www.youtube.com/watch?v=5jbY8mlR2BI&feature=youtu.be Video 4]
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|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"|Video
|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"|[https://www.youtube.com/watch?v=QJgfbnPBkUQ&feature=youtu.be Video 5].
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|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"|Video
|style="border: 1px solid grey;" cellpadding="0" cellspacing="0" align="center"|[ Video 6] in process.
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I cannot say that I've met all my goals but I feel satisfied how the project went. It was a laborious work to recruit patients to follow the course. It was arduous to encourage beginners to create and increase the number of articles in Wikiquote in Spanish but we have now '''18''' more new articles, which means a lot in a project with so few users contributing.
I created the project page on wikiquote which is growing and expanding. I could not use the twitter of the Department of Adolescence since they are not using it, but I could write an article about the project at their official website. I uploaded many photos in the FB that were seen by many people.
I also wrote about the course in my blog on WordPress. I'm preparing a poster to present at a Conference in Buenos Aires and another one to be presented at cientific conferences and at Wikimania 2017, in English and Spanish. One of the most important outcomes that was achieved was the awareness, visibility and understanding of the Wikimedia projects among professionals. Now I can talk with members of the staff and they know what I am doing, they understand Wikimedia's missions and scopes, they know that anyone can edit Wikiquote or Wikipedia. The Chief of Staff of Adolescent Unit offered me to prepare a project to work with doctors and
I am even working with a patient who was sent by another hospital, from the Day Care Unit of the Hospital Posadas.
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I could do some Global Metrics.
One outcome that made me happy it was that the group of veteran editors showed a great interest in the project. They are making proposals on how to improve the project. Several users offered me to collaborate online and to help the patients.
The project had a great acceptance among the users of Wikiquote, who have offered us an incalculable support that can be seen in [https://es.wikiquote.org/wiki/Wikiquote_discusi%C3%B3n:Wikiquote_en_el_hospital this page]. I am afraid that this would not have happened if I had worked
I am currently taking interviews and recruiting patients to begin a new group
I am also researching about the beneficial effects of editing as being part of a bigger community and I hope to continue doing it. I am still writing a paper in Spanish with the results of the course and the research.
I am writing an article for the Wikimedia Foundation blog. I have also created the article [[w:Hospital de Emergencias Psiquiátricas Marcelo Torcuato de Alvear]] at Wikipedia and 5 images uploaded to Wikimedia Commons by the
== Grant funds used ==
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The learning evidence shows relatively little growth in ability to implement critical skills. Learning for them was much slower than for other people and many patients dropped out. Nevertheless, I can point out some improvements.
One patient commented that the most difficult situation for him it was the punctuation. He wrote as he spoke, without capital letters or minuscule letters, without any sign of punctuation. Neither commas nor end
A female patient spent the whole week searching for famous phrases on the web to bring them to the workshop: «''Before I was sleeping all day, but now I'm entertaining looking for phrases and annotating them''».
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Another patient recognized the benefits of being able to revisit the article as many times as he needed to improve the writing.
I also observed patients being able to apply what they had learnt because they were able to use the knowledge they gained, specially when they created an article from zero. I see that we could improve quality of Wikiquote content.
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The use of digital technology to educate patients is an important driver of patient engagement and it can help move from the patient as a passive recipient of knowledge to one actively engaged in editing and creating knowledge.
I would feel very gratified if other workshops appear in other countries or in other hospitals if the foundation supports them, and I
I am now recruiting patients and I expect to begin a new course on May with a new group of users.
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